Current Projects 

Parent Interviews Regarding Service Transition for Children with DD (PI: Christine Mirzaian)

Understanding Experiences with a Spinal Cord Injury for Transitional Aged Youth and their Caregivers (PI: Carol Haywood; Co-Investigator: Glenn Takata)

Needs assessment survey: Transition to adult mental health care among adolescents and emerging adults with intellectual or developmental disabilities (PI: Cecily Betz; Co-Investigators: Christine Mirzaian, Alexis Deavenport-Saman)

Internet Survey Exploring HCT Outcomes of Adults with Spina Bifida (PI: Cecily Betz)

HCT Experiences of Young Adults with Chronic Illnesses (PI: Cecily Betz)

Community-Based Transition Program (Cecily Betz, PI)

Post-transfer Survey of Health Care Transition Outcomes of Individuals with Spina Bifida in Movin' On Up Health Care Transition Program (Cecily Betz, PI)

Health Related Accommodations of Adolescents and Emerging Adults with Spina Bifida Enrolled in the Health Care Transition Program, Movin' On Up (Cecily Betz, PI; Kathryn Smith, Co-Investigator)

Internet Survey of the Health Care Transition Experiences of Young Adults with Chronic Illnesses/Health Conditions/Disabilities (PI: Cecily Betz)

Biopsychosocial Health Care Transition (HCT) Outcomes of Adults with Spina Bifida (PI: Cecily Betz)

Survey on the transition needs of youth and young adults with intellectual and developmental disabilities (PI: Cecily Betz)

Innovative Peer Navigator Employment Pathway for Health Care Services (PI: Cecily Betz)

Transition Summit II

Publications

Betz CL. Analysis of Nurse-Led Models Heath Care and Implications for Practice, Research, Education, and Policymaking. In: Worldwide Successful Pediatric Nurse-Led Models of Care. Springer International Publishing AG; 2023:313-332. doi:10.1007/978-3-031-22152-1_17

Betz CL. Nurse-Led Models of Care for Infants, Children, Youth, and Families: Introduction and Overview. In: Worldwide Successful Pediatric Nurse-Led Models of Care. Springer International Publishing AG; 2023:1-12. doi:10.1007/978-3-031-22152-1_1

Betz CL. Worldwide Successful Pediatric Nurse-Led Models of Care. First 2023. (Betz CL, ed.). Springer International Publishing; 2023. doi:10.1007/978-3-031-22152-1

Betz CL. Nurse-Led Service Models: Lessons Learned Over 25 Years. In: Worldwide Successful Pediatric Nurse-Led Models of Care. Springer International Publishing AG; 2023:229-241. doi:10.1007/978-3-031-22152-1_13

Betz CL, Díaz-González de Ferris ME. The Health Care Transitions Journal: Carpe diem. Health Care Transitions. 2023;1:100001-. doi:10.1016/j.hctj.2023.100001

Fair, C. V., Betz, C., Naranjo, D., Porter, J., Bailey, E. C., Korycinski, H., & Ferris, M. (2023). Stakeholders' Perspectives on Caregiver Outcomes for Health Care Transition for Adolescents and Young Adults with Special Health Care Needs: A Qualitative Study. Child: care, health and development, 10.1111/cch.13114. Advance online publication. https://doi.org/10.1111/cch.13114

Betz, C.L., Hudson, S., Skura, A., Rajeev, N., Smith, K.N., Van Speybroeck, A. Exploratory study of the provision of academic and health-related accommodations to transition-aged adolescents and emerging adults with spina bifida J Pediatr Rehabil Med. 2022 15, 593–605 DOI:10.3233/PRM-10116N

Betz, C. L., Mannino, J. E., Disabato, J. A., & Marner, V. (2022). Health care transition planning: A potpourri of perspectives from nurses. Journal for specialists in pediatric nursing : JSPN, e12373. Advance online publication. https://doi.org/10.1111/jspn.12373

Carolyn Graff J, Fisher M, Hill L, Reaves RP, Nelson SR, Betz CL. Closing the nursing leadership gap: Leveraging partnerships with people with intellectual disabilities and developmental disabilities. Nursing outlook. 2022;70(6):783-785. doi:10.1016/j.outlook.2022.07.009

Cheak-Zamora N, Betz C.L, & Mandy T (2022). Measuring Health Care Transition: Across Time and into the Future Journal of Pediatric Nursing, 64, 91-101, https://doi.org/10.1016/j.pedn.2022.02.018.

Espinoza, J. C., Chin, S. W., Shah, P. Tut, M. Raymond, J. K. (2022). Proposing a Practical, Simplified Framework for Implementing Integrated Diabetes Data and Technology Solutions, Frontiers in Clinical Diabetes and Healthcare, 3, https://www.frontiersin.org/article/10.3389/fcdhc.2022.867284

Espinoza, J., Shah, P., Nagendra, G., Bar-Cohen, Y., & Richmond, F. (2022). Pediatric Medical Device Development and Regulation: Current State, Barriers, and Opportunities. Pediatrics, 149(5), e2021053390. https://doi.org/10.1542/peds.2021-053390

Mannino, J. E., Disabato, J. A., Betz, C. L., Hudson, S. M., & Marner, V. A. (2022). Health Care Transition Planning: Educational Needs of Pediatric Nurses and Pediatric Nurse Practitioners. Journal of pediatric health care : official publication of National Association of Pediatric Nurse Associates & Practitioners, S0891-5245(22)00084-0. Advance online publication. https://doi.org/10.1016/j.pedhc.2022.04.001

Paraszczuk, A. M., Feeg, V. D., Betz, C. L., & Mannino, J. E. (2021). Psychometric Testing of Family Centered Care (FCC) Instrument: A Mixed Methods Analysis of Pediatric Nurses and Their Workplace Perceptions of FCC. Journal of pediatric nursing, 61, 75–83. https://doi.org/10.1016/j.pedn.2021.03.015

Schmitt, C., Castro, J., Frelinger, J. & Yin, L. (2022). Febrile Illness in 3 Adolescent Patients, The pediatric infectious disease journal, 41, 85-86, doi: 10.1097/INF.0000000000003157

Betz C. L. (2021). Nursing's Influence on the Evolution of the Field of Health Care Transition and Future Implications. Journal of pediatric health care : official publication of National Association of Pediatric Nurse Associates & Practitioners, 35(4), 408–413. https://doi.org/10.1016/j.pedhc.2021.01.001

Betz, C. L., Mannino, J. E., & Disabato, J. A. (2021). Survey of US pediatric nurses' role in health care transition planning: Focus on assessment of self-management abilities of youth and young adults with long-term conditions. Journal of child health care : for professionals working with children in the hospital and community, 25(3), 468–480. https://doi.org/10.1177/1367493520953649

Espinoza, J., Xu, N. Y., Nguyen, K. T., & Klonoff, D. C. (2021). The Need for Data Standards and Implementation Policies to Integrate CGM Data into the Electronic Health Record. Journal of diabetes science and technology, 19322968211058148. Advance online publication. https://doi.org/10.1177/19322968211058148